Around the house
Since we've been home, we've pretty much just been hanging around the house. Corey is doing really well, though he still doesn't want to do much walking or moving around. We've been carrying him from room to room, mostly, and to the potty. He's very put off by his terribly marked/scarred up chest, which is still very angry looking, as well as the stitches from the chest tubes (they remain in until we see Dr. Brenner on Wednesday). Taking off his shirt for any reason, therefore, ends in a lot of screaming.We did opt to get a bit adventurous yesterday, and we took Corey and Mason for a walk, mostly to escape the house. We put Corey in the stroller with his stuff and his Linus, and he just hung out the whole time. He really seemed to enjoy it. It was funny, but we ran into Katie, Corey's PICU nurse! How "small world" is that? She was walking with her baby, Sam, and her dog, Attila. Attila is a bulldog - the name certainly looks appropriate. She was so happy to see Corey out, even just in the stroller. Kaite, not Attila. Attila rather looked like she might like to have Corey for a snack.
In any case, for follow-up Corey will have an appointment with Dr. Brenner, where as I said his stitches will be removed, he'll be examined, and he'll have a finger stick to check his coumadin levels. The finger stick seems like a simple thing, but once you realize that they have to squeeze enough blood out of the little prick to fill a very small container, it's less appealing. After that, we'll go to LabCorp for weekly sticks for the following two weeks (again to check the coumadin levels), and then monthly after that. Apparently it takes some doing to get the coumadin levels exactly right.
We also have an appointment with our pediatrician the following Wednesday (in two weeks). It'll be good to have Dr. McKay see Corey then - I'm sure I'll be ready to have him examined again by then, just for my own peace of mind.
Thanks again to everyone for all the food, toys, prayers, love, support and visits to the hospital. Our amazing family and friends made this extremely difficult time much more bearable. And most importantly, Corey felt the love!
Be sure and check all the pics out that Damian posted during the Fontan process.....